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January 25, 2014 By edfennell Leave a Comment

2nd Annual Rare Disease Day Forum

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AMC is proud to announce

the 2nd Annual World Rare Disease Day

Conference

February 26, 2014
1:00-5:00 PM
Hilton Garden Inn Albany, NY

Topic: Pediatric Rare and Complex Diseases
Planning a Diagnostic and Care Management Process
A Community Discussion led by:

Panel

Natasha Shur, MD Division Head Genetics
Patricia M. Hopkins, MD Division Head, Pediatric Hospital Medicine
Melody Palange, Program Director, Children’s Health Network
Kelly Gross, Coordinator-Participatory Family Centered Model
Moderator: Ed Fennell, Coordinator AMC Rare Disease Forum and President of NYS Rare Disease Alliance

This forum is an opportunity for parents,regional agencies and professionals to participate in building a leading edge Family Centered Medical Home for children with complex diseases. Please join us and help us initiate a regional program worthy of duplication around the state and nation. Please forward this announcement to your colleagues.

Contact: Ed Fennell 518-729-4262 H
518-285-9701 C
RSVP: efennell43@gmail.com

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